![\"\"\/](\"https:\/\/marfan.org.pl\/wp-content\/uploads\/2019\/10\/logo.png\"){kind=logo}
<\/figure>\n\n\n\nMarfan syndrome is a disease with a prevalence of 1:5000. It is easy to calculate that there are approximately 8,000 people living with Marfan syndrome in Poland, plus two to three times as many patients with other Marfan-like connective tissue diseases. According to official data, only about 30% of patients are aware of their condition.<\/p>\n\n\n\n
Therefore, the mission of the Marfan Association is to help patients in their difficult struggle with this rare disease and to spread knowledge about Marfan syndrome among doctors and patients who are affected but do not know it.<\/p>\n\n\n\n
For Further information, please visit the website of the association:<\/p>\n\n\n\n
https:\/\/marfan.org.pl<\/a><\/p>\n\n\n\n Emilia was born in 2015 with a genetic disorder affecting chromosome 18. She is fed via PEG (i.e., she is fed through a stomach tube). To help her development, she needs intensive and long-term treatment and the help of several specialists, including a physiotherapist, speech therapist, and psychologist. You can support Emilia with one-time donations and 1,5% of your tax through the Fundacja Dzieciom foundation.<\/p>\n\n\n\n KRS: 0000037904<\/p>\n\n\n\n Aim of donation: 32495 Thiry-Sadowska Emilia<\/strong><\/p>\n\n\n\n Further donations: 42 2490 0005 0000 4600 7549 3994<\/strong> (Alior bank) Further information on the website of the fundation<\/a><\/p>\n<\/div>\n\n\n\n Olek is battling severe neuroblastoma. This is a malignant tumor of the sympathetic nervous system. He is currently undergoing immunotherapy, which may improve his condition, but it comes at a huge cost.<\/p>\n\n\n\n Thanks to the 1%, and later 1.5%, you donated last year, his treatment can continue successfully. I recommend that you continue to support him!<\/p>\n\n\n\n Olek’s parents provide up-to-date information about his condition on the following page.<\/p>\n\n\n\nOur Further recommendations<\/h2>\n\n\n\n
Thiry-Sadowska Emilia<\/h3>\n\n\n\n
Baby girl born with rare genetic disorder<\/h4>\n\n\n\n
add to the description: „32495 Thiry-Sadowska Emilia darowizna na pomoc i ochron\u0119 zdrowia<\/strong>„<\/p>\n\n\n\n![\"\"\/](\"https:\/\/dzieciom.pl\/wp-content\/podopieczni-zdjecia\/32495.jpg\")
<\/figure>\n<\/div>\n<\/div>\n\n\n\nThe healing of Aleksander Stec<\/h3>\n\n\n\n
Fundacja Iskierka
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